I have MCTD (RA.lupus.raynauds,myositis,sorgen's) double scoliosis ,spondyolitis,stenosis. No FM here. I can't exercize to much because of paraplegia in my legs ,mild in arms and my hands and sight is bad.
I can't see my GP or RD because the co pay is 250. 00 a visit until my share of cost is covered. So soon I'll be out of my meds. I should have medicare in a year or so but with several of my joints going to bone on bone ,plus my spine causing a lot of nerve compression I may have to a few joint replacment s by that time or sooner.
I miss being active . I use to go to the gym 4 to 5 times a week . But I worked as a model then and had to be under a 110 lbs and healthy looking. But times have changed me but I miss it so much.
Right now the pain is very difficult to deal with and topical creams don't help me. I guess I'll have to find a way to deal with it.