The type of MS I have is a slow progression, until recently.  It seems as if the remission periods are shorter, and the pain is longer.   Pain is something I endure,but when it gets out of hand, I do have a tens unit that I use to control it.  It's worked good, and for me better than the medication. I remember my Dr. sitting in her chair., looking at me very seriously.  She said, normally, people with this, end up in a wheel chair in 3 years, dead at 5 years. I was so stunned by that, I didnt know how to react.  I don't think I ever did. What it did for me, was get me online and begin researching alternative methods of treatment, and that has been the best thing I could have done for myself.    It's been now 8 years since was told I would die in 5 years, I'm still walking, just not the distance I use to.     I used to get depressed about it, wished I was dead already why make me suffer more than I was.  I had to quit my job,learn another lifstyle, lost all of what  I had.  Acceptance is very difficult, but I finally realized things are the way they are, and I began to learn what courage is.

I wished there was another word being "disabled", because to me that sounds like I'm broken, and I'm not broken I've been compromised. 

Hi Mitch nice to meet you. 

I totally agree with you about listening to the Dr.'s     I don't believe they really know what they are doing.    I also agree with you about staying positive.   I do as much as I can,and on days I can't, then so be it I just don't.  

When my body became compromised (I refuse to use the word disabled) I learned how to meditate which I love, and I love music.  Music has always eased my heart worries about things. 

Thanks Mitch for responding, I really believe there's a bunch of ghosts in here,  because no one participates. It's nice to know that someone does reply.  Anybody else out there want to share what it's like living with MS, or any physical or mental compromise.

Do you ever look up what food can offer the body in terms of healing?   Chili's its capsicum  (don't know if I spelled that right) and ginger is an anti inflammatory.  Both of them help with digestion of food.     Next time you get a craving just put in your browser medicinal properties of, then put what your craving and you will find that your body is trying to heal itself with those cravings.   It's fascinating, I've been doing that for years now.    Sometimes I crave ice cream, bacon things that are not really all that good for me,but i figure this way, if I don't eat them all the time, when I do it's not that bad.    

Nice to see you again Mitch, you also have a good day

You can also make a tea from ginger.  I've done that a lot.  I've taken herbs (culinary) and made tea.  Fresh rosemary, tyme it's delicious, and no caffeine.  

I started Mitch because I was having food issues, unable to eat and one time in dream  I heard a voice say take this,  so that's how I began.  It's just a habit with me now.    If you have a cup of thyme tea, you will get energy without the caffeine.   Caffeine is so dehydrating within our bodies..  I use to drink a lot of it, but I've been off for 2 years now.  

Anyway, time for meditation and prayers.    

It's nice to meet you Mitch. 

That's the best advice Mitch that anyone could give to another.    Thank you very much.   

Have you seen my other post Mitch about Procarian, have you heard anything about it? 

Shai 

Have a good day Mitch

My husband has secondary progressive.  He has not been on any meds since Febuary because of money.  He is not a go getter like I am.

Hi Pam thanks for participating.  Your husband can go to a health food store and they may be able to help him with some things.   MS affects us all differently.   At first it was only my legs, then I couldn't digest my food very well, not it's my arms.  I'm still walking although funny but I am walking. 

Does your husband do any walking or some sort of exercise, if not, it would be a good idea.  Your can also get something for you depression if you don't take anything for it.     But remember, when one starts taking "natural medicine" it takes awhile to get in there system .

Take Care

Glad to have a place thats not affared to tell it like it is. I have had M.S. for 11 years.I have had my share of ups and downs. Everyone acts like they can catch it i lost most so called friends when i could no longer get around without a cane.THEY ALSO TOLD ME I ONLY HAD A FEW YEARS .STILL here, never listen to everything you are told. Keep moving even with pain it is the only way. THANK YOU for talking openly  lolita

Lolita, thanks for joining.   I'm really sorry that your friends don't include you anymore.  It's only because they are unaware of the disease, and probably afraid that you were gonna die and they would be in  pain.  I think more education needs to be gotten out there to the public and let them know that we can live long lives depending on the progression of MS we have.  

I don't walk with a cane yet, but I probably should.   I don't fall down, but I know it's coming soon, that I will start to fall. 

I had a few bad attacks 3 nights in a row, then a few days off and then I had another one but it was a small one in comparison with the others.  The attacks usually happen when I sleep,  and of course it wakes you up because the pain is so intense. I'm pretty much housebound right now, until things get a little better for me.   The biggest problem I have is with digestion. I don't digest food very well.  My dr told me I would be in a wheel chair in 3 years, and dead in 5 years, that was in 1999.    I don't go to drs anymore, everything I take is herbal, and I watch my diet.    Being open about what happens to us who have MS is the only way that people are going to be educated with either their own condition, or with someone they know.   Vitamin B [all of them]  really works at least for me.  

Once again thank you for joining in, and welcome.    

Shai ^I^

I thought I would write an update on my situation since it has been a very long time that anyone has posted anything.

Back in February I fell, and broke the knee cap, they call it a non displaced fracture...  What happened was that it came apart, and then popped back into place.   This is the kind of fracture that the Dr couldn't do anything about.  They put me in a brace gave me some pain pills and sent me home.  When back in May for a follow up, and xrays showed that the lower part of the knee cap had slipped down and they don't want to do surgery.  sooo they put me in another permanent brace with hinges so I can bend my knee.  It also helps me walk.  so now I'm crippled, lol... Would this fall in the category of Murphy's Law  [I'm laffin]  

I hope everyone else is ok and healthy.... 

Take Care, Shai